About Me

Name:
Sue

Location:
Southern New Jersey

I am a Mom to 2 amazing and fun daughters and wife to a great guy and a wonderful father!

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Kayla
Kayla, my oldest. She is 4 1/2 and is a sweet, loving and silly little girl. She took us 2 ½ years and 3 IVF’s to conceive. Kayla is allergic to dairy. We manage her allergy and work to balance her safety with giving her a normal childhood. Kayla loves to read books and play games - she amazes me every day.


Alysa
Alysa, my youngest. She is 3 years old and is a silly little spitfire. She’s our monkey and loves to climb on everything. She was a “natural” baby, but it was only b/c of my wonderful doctors that we were able to stop an impending miscarriage. Alysa suffers from Acid Reflux Disease and sleep apnea. She may be little, but she has a big personality. She adores her big sister and is so much fun to be around. She keeps me laughing every day.


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Mothers Day 2009

Tuesday, October 17, 2006
Here We Go Again...
So about 3 weeks ago, Kayla decided to barely eat again. She has cut her food intake in at least half. And for a child who was Failure to Thrive and is still borderline, that is a very scary thing. A week after she cut down on her eating, she started with night wakings. So it's been a long few weeks. She has been checked out by her Pediatrician and she's not teething her molars, nor does she have an ear infection or anything else obvious. And she'll tell me she's hungry and beg to eat while I'm cooking her food, but then she'll eat very little. So last Friday, her GI doctor increased her Prevacid and we're hoping that works. I have also spoken to her Feeding Therapist (who she no longer sees). She was going to think on it and get back to me. Well, her GI doctor's office called last night and told me that they want to put her on a NEW medicine. This one is an appetite enhancer. I can tell you that this makes me very unhappy. No one wants to medicate their kids, but of course, I will do what needs to be done. I have not problem with her on the Prevacid b/c it's obviously needed and it made a world of difference last Spring. But I'm afraid of artificially increasing her appetite. Will it mask the symptoms of a bigger problem? Is this really the best course of action? So I planned today, to leave a message to have the doctor call me back. Then last night while I was putting the girls to bed, her Therapist called to say she had spoken to the doctor earlier that afternoon. So now I'm wondering if this new course of action came out of that conversation.

Unfortunately, I won't know until I catch up with her today. I can say that my stomach is in knots and I can't imagine heading down this slippery sloap again. So this would mean that Kayla is on a Calorie Supplement, Prevacid AND an Appetite Enhancer. Will it ever end?

Now, I do trust her doctors and her therapist, but that doesn't mean I run on blind faith. I won't put her on anything w/o making sure I understand 110% what it's for and why, etc. So while I am waiting to talk to all the parties involved to get all my answers, I will start on the quest of finding out the details on the medication, as I have to call the Pharmaceutical company to verify that it has no dairy in it. Yes, we truly have to check EVERYTHING. You'd be amazed how many medications have dairy in the ingredients.

Wish me luck - I will post later with any findings from today's "rat race".

And I'll also be back later as my sister was kind enough to tag me.
:)


posted at 9:07 AM  
  1 comments



1 Comments:
At 8:48 PM, Blogger Christine said...

Oh, Doodle, the stomach in knots thing is terrible. There's nothing worse than worrying about your child constantly. Sending hugs and prayers your way.

 

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